Just Keep Taking the Next Step

 “Faith isn’t the ability to believe long and far into the misty future. It’s simply taking God at His Word and taking the next step.”  
~ Joni Erickson Tada

So . . . where do things stand with all those Rosenow kids? We have a few answers — in the short-term anyway.

Nathan spent two nights in the hospital, and while we weren’t able to get completely clear answers, we were able to at least determine that the changes and increases in medication were definitely making things worse. He is doing much, much better now that we removed these meds. He is scheduled for a PET scan in a couple of weeks and then we’ll follow up with his neurologist again.

The doctors insisted on keeping Nathan sleep deprived to increase the chances of inducing a seizure; as a result, Scott and I were also very sleep deprived by the time we all got home. Even during the few hours we were allowed to try to sleep, I wasn’t able to. My brain was working on so many things, but for most of that time, I was able to pray and even felt God’s presence and leading in ways in which I’m not often able while walking through the hustle and bustle of daily life at home. And Scott and I made some big decisions.

Some of these decisions concern our almost-adult children and tough choices about their futures. Remember all those little kids we adopted? At one point we had nine children under the age of nine! Well, they are all becoming adults now, many at the same time, and piling up at the front door as Scott and I face the at-this-moment-overwhelming task of getting them out into the world. We knew this day would come eventually. We aren’t sure how it got here so fast. Now that we’re standing on the brink of it and looking at all it will involve, it’s even harder than we expected it to be, and harder in different ways than we expected it to be. I’ll be honest. Sometimes, when I stop trusting God with the things “long and far into the misty future,” I’m absolutely terrified about this next phase of life with them.

scott-kids-zoo-2005

Scott with our “nine-under-nine” kids 12 years ago

I’m tempted to listen to the lies in my head that say, “They would’ve been much better off and had better opportunities if they had come home to a family with fewer children and more money.” That may turn into another whole blog post someday, but for now, I’ll just say that God has given us some clarity about a few next steps, and much peace about trusting Him for the steps after those. And He has also lovingly reminded us that He is the one who decided what family these children belonged in. Bringing them here — to us — is part of His plan for their futures, even if we can’t understand how.

Other decisions we made concern the whole family and choices about their medical care.

During the days leading up to Nathan’s hospitalization, we were listening to our little ones pray before bedtime one night. We were struck by the choice of wording in their prayers. “Dear God, please help tomorrow not to be so stressful.” And, “Thank you, God, that today wasn’t as stressful as yesterday.”

Jaden Praying

Nolan Praying

We felt like we were peeking into their little hearts (just as I peeked to snap these pictures) and seeing some of what the past few months had been causing them to feel and think. And while we thrilled to hear them go to their Heavenly Father with these feelings, we also knew that, even though we have to trust God to handle the stress-inducing aspects of our life that we can’t control, we needed to examine closely any ways to reduce stress in areas we can control.

  • So first of all, we declared our first full day home from the hospital (a Friday) our second official Tomato Soup Day. This was a good first step toward bringing rest, relaxation, and a re-set into the tense atmosphere here at home.
  • Scott and I focused on leaning harder on God for the strength and patience we need to guide the family through this tough patch we currently find ourselves in, and we tried to make ourselves even more physically and emotionally present throughout that whole weekend to give the kids large doses of our time and attention.
  • We contacted our urologist and explained the situation, asking if he felt comfortable postponing Jaden’s surgery while we focused on getting the other kids stable. He has been caring for our children for fifteen years now and understands the importance of prioritizing needs. He readily agreed that, while Jaden does need this surgery, some of the other children’s needs are more urgent, so Jaden’s can wait for now. Just knowing we weren’t entering the hospital on Feb. 28 for a 10-14 day stay, instantly removed a lot of stress and anxiety for all of us.

One last thing we decided over that weekend, after checking the weather forecast, was to punt regular school and head to the zoo that Monday for a field trip. We totally forgot that public schools were out for President’s Day, and most of Cincinnati also chose that day for a trip to the zoo. Maneuvering our motley crew and six wheelchairs through the crowds made the day not quite as relaxing as we had pictured, but it was still a fun day.

Then on the way home, things took a very interesting turn when our big van — the one Scott was driving with most of the kids and wheelchairs as I followed behind in the minivan with the rest of the kids and wheelchairs — broke down (again!) on 75N. Initially, Scott and I both felt like putting our heads on the steering wheels of our respective vehicles and crying. Thankfully, that only lasted a few seconds. We, pretty quickly, managed to grab hold of the truth that we wouldn’t be there unless God had some reason born of His perfect wisdom and perfect love and perfect understanding of good, and we put our heads together to begin making plans for getting the van towed and all of the kids and their equipment home.

In the end, a neighbor who happened to already be in that part of town, was able to take six of the kids home; our oldest daughter brought their large van and took home the next nine kids and some of the wheelchairs; the broken van was towed to the repair shop, where it’s still sitting almost a week later; and Scott and I took the rest of the kids and equipment home in the mini-van.

While this incident did add to Scott’s and my stress as the grownups in charge and responsible for handling everything, most of the kids seemed to think it was just a great adventure. Since our biggest concern was trying to alleviate stress for them, we were relieved to see their reaction to this surprise incident. Once we got everyone home, we ended the way we traditionally end days that include car breakdowns. We had ice cream with toppings, and watched old episodes of I Love Lucy. If you’ve read our book, then you know that this tradition dates back to years ago when Scott coined the phrase, “if you can’t beat the dragon, then throw a party.” Overall it was a good, if tiring, day.

Zoo - President's Day 1

Waiting in a long line to see the giraffes

Zoo - President's Day 4

Many happy smiles at the zoo

Zoo - President's Day 5

An elevator full of a small overall percentage of Rosenows

Zoo - President's Day 6

Dead van. What to do now!?

Zoo - President's Day 7

Our neighbor rescuing the first six kids

Zoo - President's Day 9

Little cluster of kids in the median drew a lot of attention from other drivers

Zoo - President's Day 11

Our daughter taking the next nine kids and some of their wheelchairs

Zoo - President's Day 12

A State Farm Assist Patrol driver stopped to help keep us safe while we waited for the tow truck

Zoo - President's Day 12

An Evendale police officer also stopped to help

Zoo - President's Day 14

Our old van finally being towed to its home away from home, Danco repair shop

The next day — Tuesday — we plunged into one of our most exhausting weeks ever. A week absolutely packed with appointments all piled on top of each other. By the end of the week, we were all exhausted again, and I was running fever and fighting a stomach bug. But we had some plans in place for more next steps. 

  • A visit with our urologist officially confirmed that Kathryn does have to have a major bladder surgery to build a Mitrofanoff, which is an opening in her abdomen that will allow us to begin catheterizing her every 3-4 hours for the rest of her life. This is necessary because of how very difficult it is to catheterize her traditionally due to her severe cerebral palsy. Our kids with spina bifida have had (or are having) this surgery done too, but for other reasons and with additional steps for reconstruction of their bladders. It is our prayer that Kathryn will only need this one piece done. If that’s the case, her surgery and recovery should be easier than it has been for the other kids.
  • One of our big concerns has been when to do this surgery. It needs to be done soon because of the above-mentioned challenges of cathing her when she runs into trouble, but there’s a pretty long wait for OR time for this particular surgery. This wait would push us out to spring or summer, interfering with Kathryn’s swimming. This is a huge deal because swimming is the only real exercise Kathryn is able to get, and that’s critically important for her overall health. We, along with our surgeon, have put a workable plan in place that will hopefully hold her until the end of August. She typically hits a period of urinary retention (which sometimes also includes another urinary tract infection) about every three weeks. In between those times, she is able to void on her own and remain fairly normal, but when she hits these periods, a Foley must be placed for a few days to allow her bladder to rest and re-set itself. While this routine isn’t a viable long-term solution, we feel we can keep it going long enough to get her through the summer. These steps will protect her bladder during the wait for her surgery. So they have set us up with supplies here at the house to continue this cycle: place Foley; let her bladder rest for a few days (treating infection when needed); remove Foley; allow her to empty normally for however long she is able (usually about three weeks); repeat. We pray she will hold steadily to this pattern until her surgery, which is scheduled for August 22.
  • Roslyn’s botox injections to her bladder haven’t made any difference at all for her. It’s pretty certain now that she will have to go back into the hospital for another surgery. This one will include the very difficult addition of a bladder augmentation now. That is tentatively set for October once Kathryn is through her surgery.
  • We will break for the holidays and then tentatively plan for Jaden’s surgery next February, possibly followed by Lilyan’s that September.

We honestly don’t know how many of these plans will actually end up the way we are hoping, but all we know to do is just keep taking the next step and the next, adjusting as God reveals any changes He has, since He holds the only set of Master Plans.

One last thing. Many of you know that Scott’s younger brother was diagnosed with terminal brain cancer last spring while Scott was going through his cancer treatments. Brian and his wife Karen have been beautiful examples of trusting God along unseen paths as they have walked this very difficult and unexpected way. You can see an awesome video about their story and their testimony by clicking here. Things are continuing to progress for Brian, and while Scott and I know that we will spend eternity with Brian eventually, our hearts have been longing to see him again before the time comes for him to go Home. Finances and the kids’ ongoing medical issues have prevented us from doing that, up to this point.

We feel like we have a better understanding of what’s going on with all of the kids, and now that we have them somewhat stable, we feel like we could slip away for a couple of days with Greg and Kristie moving in here to stay with them. Thanks to financial help from dear friends and our loving church, we will be making a quick run down to Birmingham next weekend. A nurse friend has agreed to be available should Kathryn or Nathan need her intervention while we are gone. We are looking forward to this special time of fellowship with Brian and Karen.

As always, our hearts ache for ways to express the deep gratitude we feel for those who link arms with us, and even carry us when needed. Thank you, all of you, for staying by our sides as we keep taking next steps, one at a time, trusting God to grow our faith and to handle those steps that are not yet clear to us.

Kiss the Wave

Wow! The last week has been so hard. I’ll recap a bit:

  • Last Tuesday, January 31, Nathan had a really bad seizure that didn’t respond at all to his emergency meds. Scott and I were at a routine appointment for me, and tried to, over the phone, talk 18-year-old Robyn through how to care for him until our oldest daughter and son-in-law could get to the house. We are now very hesitant to leave the house at all unless it’s absolutely necessary.
  • The next day, Wednesday, he had another, but the emergency meds worked to stop it and he slept most of the afternoon.
  • On Thursday, he remained more stable than we’ve seen him in a long time, and that was a good thing because Channel 12 had tentatively planned to do a little story on our family and our newest family member. We were able to go through with those plans and were actually very blessed by their visit our home. If you’d like to see that interview and learn about this new family member, you can see it here.  You can watch the video by clicking the photo of our family at the top of the article.
  • Friday, Nathan had another seizure, and Kathryn began having problems again that resulted in her having to be catheterized.
  • Saturday, as we were trying to prepare for birthday celebrations for Caelyn and Jaden, Nathan had another bad seizure that failed to respond to the emergency meds, and Kathryn got worse. We had to place a Foley catheter to stay in place for Kathryn, and spent most of the afternoon by Nathan’s side. Thankfully, everyone was stable enough by evening to enjoy the birthday celebration. (And Jaden was super excited about his new Captain America costume.)
  • Sunday brought another seizure for Nathan, and Kathryn seemed to be getting worse.

 

That brings us to today. I woke up this morning kind of dreading the day and what it might bring with it. During my quiet time before the day actually got going, I spent my prayer time asking God to help us trust Him with whatever the day held. One of the quotes I read this morning was this beautiful one from Charles Spurgeon:

“I have learned to kiss the wave that throws me against the Rock of Ages.”

Wow! What peace we would all find if we could only do this. This is one of my ongoing prayers, and I think that the phrase, “kiss the wave” will become a regular one around here now.

And yesterday, I stumbled across this one from C. S. Lewis:

“The great thing, if one can, is to stop regarding all the unpleasant things as interruptions of one’s ‘own,’ or ‘real’ life. The truth is of course that what one calls the interruptions are precisely one’s real life — the life God is sending one day by day.” 

Everything that happens to us during a day is part of God’s plan for continuing to refine us and teach us to lean harder on Him. I so long to submit to this teaching with joy. I want to embrace all that He has for us and trust Him as we walk this current path. It’s easy to miss the beauty He has for us in the pain if we just keep looking past it and waiting for it to be over. I confess that I’m not strong enough to do this, but God has promised to give us strength in our weakness.

And today did bring many hard things that we weren’t strong enough for.

Among those was yet another seizure for Nathan that completely disrupted our school day. The kids are all feeling so worried for him and are showing signs of the stress that is part of daily life here right now. After contacting Neurology and filling them on the weekend, they have decided to admit Nathan to the hospital for 1-3 days and nights of a continuous EEG. Unfortunately, there are no openings for this until Tuesday, February, 14. Our neurologist is planning to keep Nathan somewhat sedated between now and then to try to control the seizures, and we are on a cancellation list in case something opens up before then.

Also, Kathryn’s culture results this morning showed that she has another bad urinary tract infection, which explains why she is continuing to get sicker. We were finally able to get her on an antibiotic this afternoon, but she is in a lot of pain now. We have left her Foley in place and are waiting for Urology to call us back with a long-term plan for her.

But God’s blessings were right there in the middle of everything, too. My friend dropped off our huge Click List order this morning, and I thanked God, one more time, for this dear friend who runs this errand for us every single week. What would I do without her?!

CL Delivery 2-6-17

Another friend is going to provide food for the family while we are in the hospital with Nathan. This will help so much as Greg and Kristen move over here to stay with the kids and deal with any emergencies Kathryn might have.

Tomorrow, another dear friend will deliver our milk, eggs, and butter from Springboro. She also runs this errand for us every single week, and we can never express how much this means to us

And although the older kids are all experiencing weariness from the continual stress and from trying to help us carry the younger kids through this time, they gathered in the kitchen this afternoon — without even being asked to do so— to prepare dinner for the family. There is so much that is wonderful here inside our walls in spite of the pain and sadness that’s overshadowing the days right now, and in spite of the regular challenges any family faces as they raise adopted children from tough backgrounds. We have so much to be thankful for.

Meal Prep on Hard Day 2-6-17

As I type this update, Kathryn is snuggled here on the couch beside me, resting and fairly peaceful, while we wait for her antibiotic to start working its magic. And I’m thinking again of those words, “I have learned to kiss the wave that throws me against the Rock of Ages,” as I lean into this Rock and try to trust Him to take us, step by step, through the days to come.

Kathryn Sick - UTI 2-6-17

Treading Water

Life has continued to roll along at a pace that takes our breath away and keeps us feeling like we need to move faster if we want to keep up.

I remember when I took swimming lessons as a child. My mother had never learned to swim very well, and was determined that her children would be able to keep themselves safe in the water. I was terrified. Not being able to feel the bottom of the pool under my feet would send me into a panic every time.

Eventually, I did learn to swim well enough to be able to enjoy playing in a pool, but I never liked spending much time in deep water. At the end of those classes, we had to pass our swimming test, and I still remember the stress I felt about that day. The part of the test that I was most anxious about was treading water. Our instructor told us to just relax and try to enjoy the feeling of moving our arms and legs rhythmically while staying afloat.

Seriously!? I was never able to do that; I never got past the fear that I was on the verge of sinking beneath the water, and the frantic feeling of trying to keep that from happening while waiting for her to finally tell me I could stop. I passed my swimming test, but to this day, I don’t enjoy treading water.

That’s very much how we feel most days right now. We knew back in the summer that we were already facing a tough year with three huge bladder surgeries. This is not new territory for us. We already know the things that can go wrong with these surgeries, the toll that being in the hospital for one to three weeks each time takes on our family, the impact of the long and difficult weeks of recovery even after we come home, and the many weeks required to help us bounce back from the fatigue that follows once the get-us-through-it adrenaline drains away.

But we knew that our children’s health depended on getting them done, so we came up with a schedule that we thought would work for our family and that would interfere as little as possible with the kids’ school schedule.

Our plan was to do Roslyn’s surgery in September, 2016. Done. She nailed that daunting item on our check list with amazing strength and came home faster than anyone expected.

One down, two to go.

Jaden was supposed to be next, and for now, he is scheduled for March 2 — exactly when we had hoped they would schedule his so that he can be recovered in time to swim this summer. He had to do a spine surgery first, but that was also a doable thing. So, on January 9, we checked that one off our list, too.

Meghan also had to have another hand surgery, but again, this was a doable thing, so we penciled her in for February 6, hoping to get her well on the way to recovery before Jaden’s big one.

Our perfectly designed plan then had Lilyan going in for her big bladder surgery in September — after swimming season, but in time for her to recover before the 2017 holidays.

This looked like a not-very-fun plan, but one that we could make work. We liked the idea of knowing we would have these major, life-altering surgeries behind us before the end of 2017, and we were ready to put our heads down and get it done.

Then things began to fall apart.

I’ve alluded to these new challenges in previous posts, but I’ll spell them out clearly here so that you know what’s going on and how to pray for us.

Roslyn: Her most recent tests show that her September bladder surgery is failing. Her doctor will try injecting botox into her bladder next week, with the hope that it will resolve the problems. Truthfully, though, we know that this is unlikely. We know that we are probably looking at what’s called a bladder augmentation. This is a surgery that’s even bigger than the one she just came through. We’ve already been through two of these with Caelyn and Owen, and our hearts quake at the thought of doing one again.

Kathryn: Our no-longer-so-little baby Kathryn is now nearing her 13th birthday. She has astounded everyone over the past couple of years with her ability to potty train and achieve total continence. But she is now suddenly struggling with severe and very painful bouts of urinary retention. Each time this happens, we are forced to catheterize her (which is a huge deal because of her cerebral palsy), and twice over the past three months, she has ended up with a Foley (an indwelling catheter) to allow her bladder to re-set and try working again. Her recent testing indicates that the CP that causes her pelvic floor to be incredibly tight is just making it too hard now for her bladder to continue doing its job. Unbelievably, we are probably now looking at having to do the same bladder reconstruction surgery on her that our kids with spina bifida have to have done. It’s possible that we will have to do this very soon. And this is a massive surgery. We have no idea how we could get her through anything this difficult with her cognitive struggles and tendency to begin having seizures when she is under stress. We don’t even want to try to imagine this.

Nathan: This boy (who is actually a young man of 19 now) has been through so much over the past couple of years, and we have been openly rejoicing that he is finally free of pain and wearing his new and awesome prosthesis. This has been like a fresh start for him, and through God’s perfectly designed plan, he was supposed to have started an apprenticeship with his prosthetist on January 17. He was super excited about that. But he is suddenly  having seizures that have put almost everything about his life on hold again. These seizures are, like Kathryn’s, called simple partial seizures, and they are horrible. They usually involve the illusion that walls and/or floors are moving — sometimes undulating. And they sometimes result in actual hallucinations which are often terrifying. We have, for years, witnessed Kathryn’s sheer terror when she goes through her seizures, but because of her developmental disabilities, she has never had the ability to relate to us what she actually sees. Nathan is fully capable of describing in great detail what happens when his seizures hit, and these are more than any person should have to endure. We are continuing to work with our neurologist to find a way to control them, even though we may never be able to discover what’s caused them to suddenly become part of Nathan’s life. He had a severe one this past Sunday afternoon that lasted over an hour and manifested almost like a stroke. During that seizure, Nathan was unable to think clearly, had trouble with word retrieval, and lost most of his control over his tongue, making it very difficult for him to speak. This really scared all of us. Afterward, he was exhausted, had a terrible headache, and felt like his speech and thought processes were slow for the next 24 hours or so. He is currently on anti-seizure medication now, but still had seizures again on Thursday and Friday, and Friday’s was another bad one. We will see his doctor again on January 26.

So where does this leave us? Constantly on alert for Nathan and for Kathryn; unsure what any given day will hold for us. And while we know that we will be having a bladder surgery on March 2, we don’t, yet, know which child will actually be going with us to the hospital that day for surgery. And of course this also now makes it impossible for us to have these big surgeries behind us by the end of this year as we had hoped. Treading water . . .

We are striving hard to release our hold on the plans for our lives and just live life one day at a time, letting God reveal His plans in His perfect time. He’s the only one who knows the script. So we will follow Him. We try, each day, to find ways to keep the feeling of stress in the house at a minimum and to keep life as normal as possible for the kids. They all look to us for some idea about how they should be reacting, and they trust us to keep their world stable. Please pray for us as we try to do this to the best of our ability.

Lastly, I wrote a post on my personal blog last night to share how God blessed our family’s holiday season by using His people to touch our lives. Many of you were praying for us and were even among those who gave of yourselves in some way. Please pop over and read that blog, “And Then There Were Presents; But What If There Hadn’t Been?,” by clicking on the title. That post also includes quite a few photos from this special Christmas season.

And please know how much we appreciate each of you.

Seizure Dog Saxon

Nathan, just beginning to come out of his worst seizure yet. Our golden retriever, Saxon, insisted on staying with Nathan like this until the seizure passed. It was the second time he did this. Dogs are amazing.

Kathryn to the Hospital for a Foley

Kathryn showing relief when she realized we were taking her to have a Foley placed. She has learned that this stops her pain. You can see from her eyes how these episodes affect her globally.

Roslyn - looking healthy

Roslyn, at a recent family outing to spend a gift card, looking deceptively healthy in spite of what’s going inside her unhealthy bladder

A Little Update

I just published a new post to my personal blog, “Owning My Nothingness.” I chose to write this post on that blog because it’s mostly a post from my heart. But in and through it there’s updated info on our family, too — Jaden’s surgery, new medical challenge for Kathryn and Nathan . . .

So if you’re interested, click on this title and head on over to read the latest news: “A Wasted Day Not Wasted.” 

As always, thank you so much for your continued prayers and love for our family. Those things keep us on our feet way more than you know.

 

Jaden - Rod Lengthening 1-9-16

Jaden just before surgery

Heading Home 1-10-19

Jaden on his way home from the hospital on Tuesday

 

Faith as Natural as Breathing

“When I stand face to face with Jesus Christ and He says to me, ‘Do you believe this?’ I find that faith is as natural as breathing. And I am staggered when I think how foolish I have been in not trusting Him earlier.” ~ Oswald Chambers

Hello to all of you. It’s been two months since we’ve updated. I’ll try to fill you in on life a bit, but I’m afraid this update will be a little bit long.

Scott: Thanks so much for continuing to pray for and ask about how he’s doing. We have settled into what we think will just be his new normal now, but it’s a very “live-withable” new normal, and we thank God for bringing us through those really tough months. So far, his bloodwork seems to indicate that the treatments worked, but we won’t know for sure for probably another year. While it’s unusual for prostate cancer not to respond to treatment, it does happen. A dear friend just lost her husband a few months ago from prostate cancer that didn’t respond to treatment. So as we are praying for a number of precious friends who are fighting more aggressive cancers with higher chances for recurrence and even death, we ask God to help us rest in Him if we ever start to feel afraid about the possibilities out there. And we praise Him for Scott’s good health right now.

Nathan: Again, thanks to all of you who have prayed for Nathan through these tough couple of years of pain and mystery surrounding his residual lower limb. The surgery we did in the spring has definitely worked! He is pain-free, and the slow-healing surgery site has finally healed completely. Nathan and his prosthetist are working hard together to get Nathan into a new, improved, and correctly fitted prosthesis now. We hope to have him settled into that new leg before Christmas.

Roslyn: Our sweet girl did so great through her surgery, but did have a number of problems  with her drains during her long recovery. She lost quite a bit of weight during that time, but we started her on some hefty protein shakes, and she is quickly regaining all of that. She still has one drain in place, and we hope to have that removed next week. At that appointment, we will also be discussing with the surgeon which child should go next — Lilyan or Jaden? It is our goal to have all three children through these bladder reconstructions and recoveries by this time next year.

The family overall: We are doing well. There have been some ongoing emotional struggles with a couple of the kids, and while they are responding well to the steps Scott and I have taken with them, and while we truly love the life God has called us to, it can be exhausting to walk these tough paths with them day after day. We feel like we are still a little hmm . . . not sure what word I’m looking for here . . . fragile maybe? or frail? or tender? from the whole cancer thing and the tough summer months of recovery. We seem to tire and become discouraged more quickly in the midst of hard times. We’ve also had some up and down medical challenges with several of them, and a respiratory illness hit the house and dragged on for over a month. That’s the first time we’ve been hit like that in over 2 years. We were very glad when that was finally over.

One of the most challenging things for us has been trying to catch up with all of the children’s appointments that had to be put on hold during the cancer detour. I sat down one afternoon about 3 weeks ago to make a list of all of the appointments I needed to make in order to get everyone all caught up. There were 56 of them. I was able to get 36 of those scheduled that day, and then gradually managed to get the rest of them on the calendar over the next week. Now we are actually doing those appointments, and that kind of constant running is hard. But we are hoping to keep the month of December mostly open in order to keep the holiday season calm and restful.

Another area that has been very tough for us is family finances. We have not felt that God was “giving us permission” to share this aspect of our lives until now. But now, we would like to share some of the ways in which He has been so faithful to sustain us even when we felt we were going under.

As we’ve mentioned before, there are times when God blesses us so much that we can barely catch our breath, and other times when He remains very quiet and takes us through rocky and frightening waters.  Fall and Christmas last year; the time surrounding Scott’s cancer diagnosis; and the period of travel for Scott’s treatment were examples of these times of showers of blessings. Since returning home, though, God has been so very quiet, usually only sending answers to prayer when they reached past the point where we thought they were urgent. As we have shared before, Scott’s paycheck as director of TSC has never been large enough to cover all of our monthly expenses. We knew, back when we followed God as he led us away from Scott’s engineering career, that we would have to depend on Him to provide over and above that new salary that He had waiting for us along this path we now walk. He has done this so, so many times over the years through extra gifts sent to our family through many of you. But for His own loving and perfect reasons, He sometimes takes us into places where many of those extra gifts stop coming in.

Whenever that happens, He reveals so much about our hearts. And we are always saddened by the reality of how much our faith still needs to grow and how little we still trust Him when clouds hide His face and His voice becomes quiet. We so long for our faith to be “as natural as breathing.” But He never leaves us, and our tired hearts begin to pant for more of Him as He feeds us drop by drop during those times.

Just a few examples of His provision over past few months:

  • We prayed and prayed for months for curriculum money to start the children’s homeschooling. God remained silent. We had hoped to start school in August to get a little bit ahead before having to take a break for Roslyn’s surgery. For some reason, this was not God’s plan. In fact, even as schools all around us got going again, we were still crying out for God to send money for us to purchase curriculum. Eventually, He did answer this prayer in a beautiful way, but we weren’t able to start school until after Roslyn came home from the hospital. He sent this gift through the death of a dear lady who loved books and learning and education and even homeschooling. Our hearts were so touched when this gift came to us in such an unexpected and fitting way.
  • There have been a number of weeks over the past few months when we weren’t able to buy groceries at all. God always provided for us in this area in spite of this. Sometimes it was in the form of anonymous Kroger gift cards mailed to us; sometimes we scrounged through the house and found ingredients that, surprisingly, made a healthy meal. Other times, He would send us a surprise gift of money that would be just enough to cover groceries for one or two days. The amazing families  who are part of the Rosenow Meal Ministry, and those who participate in our church’s Just One More ministry for our family, continued their delivery of food and grocery items during that time and had no idea how badly those gifts were needed.
  • A few times, birthday celebrations and gifts had to be postponed, but God has, so far, still always provided a way for us to make each birthday person feel special, even if they had to wait awhile for their turn.
  • Our precious children have learned even more about being a team as we’ve had to swallow all traces of pride and borrow money from them. We have a running list of money we’ve had to borrow from them so that we can eventually pay them all back. This list even includes $0.50 loans from our youngest ones as they offered up their tooth fairy money. Personally, I’ve fluctuated between tears of frustration and sadness over this, and tears of joy about the lessons of selflessness that our children are being given the opportunity to learn.
  • Our big van, which is very old and breaks down frequently, finally went all the way down. The brakes were gone, only one door could be opened from the outside, and the transmission was shot. It sat in our driveway for weeks, making it impossible for us to go anywhere as a family, while we prayed for God to send us money to get it fixed. An anonymous gift provided all that was needed to repair the transmission and the brakes, and we are so thankful to be able to go places as a family again now. As long as we can still open one door from the outside, someone can get inside and open the others, so we aren’t too worried about that.
  • Some of the kids are in need of shoes and other clothing items. One son’s shoes are so badly worn that the flapping sole was causing him to trip every time he tried to run. A gift from someone who knew nothing about this need has allowed us to replace his shoes and begin getting some of the things the children need.

In spite of how hard it sometimes is, we are thankful for these opportunities for our faith to grow, and we will continue praying and waiting for Him to meet all of our needs. God wants us to release our hold on anything other than Him, and if we ask Him to grow us and deepen our walk with Him, then He will bring us into situations that will cause us to see just how tightly we still cling to things of this world that mimic security. One of these for us has been the financial health of The Shepherd’s Crook Orphan Ministry over the past three and a half years. While walking through these tough months, we have thought (and even sometimes said aloud), “Well, at least TSC is still healthy and going strong.” As I just said, God wants us to find our security only in Him. And that leads me to my final area of updated news.

The Shepherd’s Crook: We are once again (and for the first time in three and a half years) in the midst of a financial crisis. This crisis is urgent and very real. We need to be rescued or we are, once again, facing the possibility of having to fold. You can read a letter here for more details. At the moment, we mostly feel peace as we wait on God. It’s easy to let our minds start to dwell on the scary possibilities, but we don’t believe God is finished with TSC yet, and we do believe that He still has much work for us to do. We are continuing to work every day just as if we will continue to exist, and we continue to advocate for the orphan. This Sunday (Nov. 13)  is Orphan Sunday, and our family will be doing a presentation at Living Hope PCA (Fairfield East Elementary School – 6711 Morris Road). The service begins at 10:00 am. We would love to see any of you there.

In the meantime, please pray for TSC, read the attached letter, spread the word, help financially if you can; please pray for our family and our hearts; please pray that God will give the two of us wisdom as we guide these children through life and that He would make us worthy examples of His love for them.

I’ll close with a few pictures and captions that we are posting on Facebook this month. November is National Adoption Awareness Month, and I usually try to post pictures throughout the month that powerfully illustrate the theme of “Adoption Did That!” 

Robyn Change

Robyn – so severely traumatized by her abandonment as a toddler on a busy street corner that she was terrified of even going outside; adopted in 2000; trembled and didn’t speak above a whisper for her first six months home; healed and glowing with joy in 2007. Adoption did that!

Roslyn and Jaden

Roslyn and Jaden – These two were raised together in the same facility from the time they were newborns and inseparable, but then suddenly separated at the age of two. This separation was more traumatic for them than anyone knew. Then they were adopted together and came home to be brother and sister forever. Adoption did that!

Voting

Nathan, Robyn, and Meghan – Former orphans, exercising their rights as Americans. Adoption did that!

Hallie and Granddad

Granddaughter Hallie. Born with Down syndrome and left in an orphanage; completely non-communicative and unable to eat solid foods at the age of almost 4. Then she was adopted. Now she giggles and rides on Granddad’s back, and last week she ate pizza and ice cream and built a new special friend at Build-a-Bear. Adoption did that!

 

 

 

 

 

 

 

 

 

 

 

 

 

Shannen - Better

Shannen – In 2008, Shannen Mariana went from being a sad, scared-of-everything orphan, to a silly, full-of-joy sister and daughter. Adoption did that!

Kathryn Latte

Kathryn – Survived an attempted abortion in Guatemala and born with severe brain damage and cerebral palsy. Abandoned at birth and slated to be moved to a mental institution. Adopted and now sipping Pumpkin Spice Lattes with Mommy and Daddy. Adoption did that!

Why There Had to be a Murphy

On Sunday, 9/11, Nathan turned nineteen, the country honored the fifteenth anniversary of the terrorist attacks on our country, and Scott and I left eighteen of our children at home under the loving and capable care of their oldest sister and brother-in-law while we brought Roslyn down to Cincinnati Children’s Hospital. Roslyn was admitted and started her two days of prep for one of the biggest surgeries we ever do with our children.

The next two days, while not completely bump-free, went better than we’ve ever experienced with any of our kids who have already been through this.

Roslyn faced a really difficult IV insertion by immersing herself in her iPad games and occasionally looking up at us for strength.

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Trying a couple of different spots to make the IV work

Once her IV was successfully inserted by the awesome VAT (Vascular Access Team) here, it was time for the NG (nasogastric) tube placement, which would be used to pump large quantities of bowel-cleaning liquid into Roslyn’s stomach. This is one of the main steps the kids all dread the most. (I don’t blame them). Once again, Roslyn did such a beautiful job of moving through this process with grace and peace. She shed two quiet tears, one of which can be seen in the close-up below, but recovered well as soon as it was done.

The rest of that day was a blur of changing messy diapers, watching the Bengals win their first game, coloring, and playing with her toy princesses.

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The Bengals’ game wasn’t looking very hopeful at this point.

That night held little sleep for any of us because of ongoing issues with Roslyn’s IV, but none of those was particularly traumatic. Just very tiring.

Monday morning started with plans for placement of Roslyn’s PICC (Peripherally Inserted Central Catheter) line. This will be used for her medications, fluids and lab draws for the remainder of her hospital stay. This can be a painful procedure, but we have a really great PICC team here, and Roslyn once again faced this with courage and a quiet calm.

During this procedure, one of the PICC team members commented on how clear it was that Roslyn trusts us so deeply. She had worked with enough children from broken homes and orphanages to know that this isn’t something that just happens for these kids. The fact that Roslyn drew her strength from having us at her side, that she looked to us to help her determine when she should be scared, and that she honestly believed us when we assured she was safe and tried to calm any of her fears, was a beautiful testimony of the healing that can take place for these children once they come home. We thank God when we see these tangible signs of healing in our children.

Once her PICC was in place, I headed down to the gift shop to pick up a little something special for our brave little girl. She loves dogs, and I found a cute little, very fuzzy stuffed dog that wasn’t very expensive. There were, in fact, two of these dogs—one in a girl version (with pink ears and a pink spot down her back), named Maddie; and one in a boy version (with brown ears and a brown spot down his back), named Murphy. I liked Murphy the best, but knowing this girl and her love of all things pink, I chose Maddie for her.

Roslyn loved this dog so much, but kept forgetting her name and decided to change it to Maggie, which was easier for her to remember for some reason. The bond between the two of them was instant.

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Roslyn with her beloved Maggie last night after Ros’s NG tube had been removed —once her final clean-out treatment had been administered.

While we were talking about where I had gotten Maggie, I mentioned to Roslyn that Maggie actually had a brother in the gift shop, too, and that his name was Murphy.

I should’ve thought that through before speaking, because of Roslyn’s history with Jaden. I can only use the lack of sleep as an excuse for that.

Roslyn and Jaden were raised together as infants in China. They were very close and shared an almost-twin-like relationship. Sadly, Jaden was moved to another facility a few months before we got there to meet them and bring them home. We didn’t know any of this ahead of time, but it was really traumatic for Roslyn when they were separated. When we met them that day in China, it was the first time they had seen each other in months—a reunion for them. They kept calling each other by their Chinese names and stroking each other’s faces. Only later did we learn about the story behind what we witnessed that day.

For the first few months after we came home, Roslyn didn’t want to be away from Jaden at all during their hours awake. She had to watch us put Jaden safely into his bed before she would go to her own room and go to sleep, and they had to go to all appointments together, even if only one of them was seeing the doctor. One night when Roslyn fell out of her bed and cried out loudly, we heard Jaden yelling from his room down the hall and found him frantically trying to get himself out of bed so he could get to her.

When Roslyn heard that Maggie had a brother who had been left behind, she looked a little panicked and kept saying quietly, “He’s downstairs and she’s upstairs?” and “He will be sleeping down there all alone tonight?” It actually seemed really upsetting to her.

As they were taking Roslyn to pre-op this morning, people were asking her what her dog’s name is (Maggie went into surgery with her). At one point, she looked up with a super sad face and said, “She has a brother named Murphy, but he’s still in the gift shop.” It actually brought tears to our eyes. This was obviously touching something deep inside our little girl.

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Headed to surgery this morning; scared, but continuing to look to us for the courage she needed to see this through.

As Roslyn realized it was almost time for her to tell us goodbye, silent tears started to run down her cheeks, and she began to tremble. She snuggled Maggie tightly under her left arm, and clutched a photo of her family in her left hand. She calmed down and trusted us as we whispered in her ear and stroked her hair. She would look at her family picture and then into our faces and draw strength from those who love her so very much.

Very soon after that, the team administered Versed through her PICC line, and she immediately became drowsy and relaxed as they wheeled her away from us and into the OR.

That was at 7:30 this morning, and surgery officially began at 8:30. They have planned eleven hours for this surgery, but it could be shorter or longer than that, depending on what they find inside our baby’s little body.

 As soon as she was in surgery, Scott and I decided that it was really important that she wake up and find out that Maggie and Murphy had been reunited. So in spite of a really tight budget at the moment we went downstairs, spent another $13, and rescued Murphy from the gift shop. I think Murphy was actually smiling as we walked out of there.

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I think Roslyn will also smile a lot once she is awake and aware of fact that her heart can rest now. I think she will sleep better tonight, knowing that Murphy and Maggie are together and sleeping in her bed.

One important piece of helping our children learn to trust us is knowing their hearts; understanding their needs and their fears and what’s behind those; listening with more than just our ears.

Maybe these puppies should’ve been named Roslyn and Jaden.

Update on Meals for Hospital Stay

We just wanted to let you all know that we are blown away! Every meal during our long upcoming hospital stay with Roslyn is provided for now. In fact, I think there are even a couple of extras for after we get home, which will be awesome because Scott and I always arrive home from these stays completely exhausted, and Roslyn will have abdominal drains that will require care for awhile after we get home.

Thank you, thank you, thank you with all our hearts. We are incredibly blessed by you.

Roslyn - Sunday Girl #2

Life Stuff; Medical Stuff; Food Stuff; Book Stuff

Life is kind of rolling over us at the moment as we begin playing catch-up from all of those appointments that had to be postponed during Scott’s treatment and recovery. We are also trying to maintain a quarantine as much as we can to prepare for Roslyn’s upcoming very major bladder surgery, and squeeze in one more book signing. Oh, and get a second book published! And we seem to be in the midst of some significant spiritual warfare as we try to keep all of these plates spinning.

I mentioned in our last update that the family is going through some tough stuff. This has not changed except maybe to get worse in most ways. We are sometimes struck anew by just what an insane mission God has called us to. It may all look rosy from the outside, but there are times (like now) when it’s absolutely bloody and grueling on the inside. We are fighting for the very lives and souls of these so-loved sons and daughters God has brought to us. And we are weak, broken, very human ourselves. We need your prayers so badly.

Specifics you can pray for are: wisdom (need SO much of that!); patience (some of our sweeties are pushing all the right buttons to drain us of this before noon each day); guidance about future steps that remain unclear to us (we are responsible for preparing every one of these children for life in the world – that is incredibly daunting at times!); discernment concerning  heart issues with our children; material provision (there is so much required to meet the daily needs of a crew this size); time and energy (there are so many children/teens/young adults under our care, and we are running short on both of these things each day as we try to be all that they need us to be); our marriage (there is so little time available for us to connect and maintain the unity required to do this as a team. And Satan loves to aim many flaming arrows at this foundational piece of our family and this mission).

I will quickly list a few details about the things mentioned in the first paragraph:

  • The appointments for the kids are piling up now, just when I need to be able to focus on getting school well underway for all of them. This is discouraging for me at times. And each appointment seems to just lead to more future appointments and procedures. Some of the 10 appointments from last week have resulted in news that 3 children will have to have very major jaw surgeries in the future (not imminent, thankfully); 3 will have to start braces on their teeth pretty much right away; and 3 others will have to spend a full day at Children’s in the coming weeks for training with a new kind of bowel cleaning system to help with their bowel incontinence. And each of these things leads to battles with insurance companies as we try to get them to do the things we pay them to do with those huge monthly premiums. I’m sure many of you can relate to these exhausting and time-consuming battles.
  • Roslyn goes into Children’s here in Cincinnati on 9/11 for a major bladder reconstruction surgery, and will be in the hospital until about 9/21. Because this is such a huge and difficult surgery, and because Roslyn has always had a lot of fear and anxiety, it will be critical that Scott and I are both with her pretty much the entire time and able to focus on just meeting her needs. Iris Klaber, one of our dear friends, is trying to put meals together for the family during our absence. She is getting pretty desperate as those slots are not filling up. This is one of those situations that requires us to swallow any pride, and humbly ask for help. Feeding this crew is a full-time job all by itself, and Greg and Kristie will have their hands more than full trying to care for all of our children as well as their own 8 little ones while we are gone. This can only work if we don’t have to even think about what they will eat. We can’t begin to count the times friends, far and near, (and even some strangers) have helped us through times just like this by taking care of this essential piece of daily life for us. And we’ll never be able to express our gratitude or just what a huge gift this kind of help is. If you are interested in helping, you can go to http://www.takethemameal.com, type in Rosenow and this passcode – 8509, and sign up to help for one meal during that time. Even non-local friends have helped in the past by sending meal cards or money to cover pizza, Chipotle, Chinese take-out, or Chick-fil-A for a meal. Iris can give you details about how to do that. Her phone number can be found at the link below.
  • We have another book signing coming up here in the Cincinnati area. As always, we would love to see you there. Details are as follows:
    DATE:
    September 10, 2016
    PLACE: The Village Troubadour
    46 Eswin Street
    Greenhills, Ohio
    45218
    Time: 4pm – 7pm
  • We have been pretty surprised at the ways in which God has used our first book to touch and move hearts. This is exactly what we prayed for. We want to remain open to any ways in which God wants to use the things He’s done in our lives to show His faithfulness to a watching world, but finding time to follow Him into these ventures, and deciding what to even try to accomplish, requires much wisdom and soul-searching. We do believe He wants us to continue the story that was left hanging at the end of Swaying in the Treetops, and we do plan to do that eventually. But we have also felt for quite awhile that God was leading us onto a little off-the-original-path project first. So we have been (kind of secretly) working, here and there, on a second book project we were calling Book 1.5, and that project is nearing completion now. We have finally chosen the title Through the Branches: A Humorous and Inspirational Look Inside the Daily Life of a Most Unusual Family for this next book. It will be a much smaller book and a much lighter read than Swaying . . . or the yet-to-come continuation book to Swaying . . . It is for those who have said that they long to peek into our windows and see what daily life is like in our home. It will be made up of a collection of short snippets (funny, sad, inspirational), and our goal is that it will help you feel that you have come and spent a little time with us. We hope that you will find that it’s written in such a way that will allow you to pick it up and put it down and read it here and there as time allows, and get to know our family a little more personally. We’re working hard to have it published and available in time for Christmas giving, and it’s our desire that it will pique the curiosity of those who have not yet read Swaying in the Treetops: A True Story of Faith and the Fatherless. Stay tuned. We will post updates as we complete the writing and begin the publication process.

Thank you for loving us. Thank you for praying for us. Thank you for even taking time to read these updates. We are feeling the need for tangible reminders of your presence in our lives at the moment, and we thank God continually for the support system He has built around us. We are so grateful for your choice to be a part of that.

Here are a couple of sweet pictures of Roslyn as you pray for her in the coming weeks. We’ve been through this surgery five times already with other children, and we know what’s ahead for her. It’s not going to be easy. It’s so hard to watch them suffer.

Roslyn - Sunday Girl #2

Roslyn

 

Return to Knoxville: The Good, the Bad, and the Beautiful

“God’s children are strengthened by their falls; they learn to stand by their falls. Like tall cedars the more they are blown, the deeper will they be rooted . . . so that after all outward storms and inward declensions this is the issue, ‘They take root downward and bear fruit upward’ (Isaiah 37:31) for the Lord restoreth their souls.” ~ Richard Sibbes (1577-1635)

Scott and I are currently in Knoxville for his first cancer post-treatment follow-up. We have very good news, and some somewhat disappointing news.

The good news is that his PSA has dropped dramatically since treatment. Although his doctor cautioned us that we can’t know for sure that Proton Beam Therapy was successful in killing the cancer until about a year after treatment, a drop in PSA is a good sign. But indications in this area for Scott were in the “Wow!” category. Typically, they hope to see about a 30% drop in this number at this 3-month check-up, and they tell us that they often even see a drop as dramatic as 50%. Scott’s number dropped a whopping 75%! The team at Provision was very, very pleased with this result, and assured us that it’s a great sign. We are so thankful for this encouraging news!

On the negative side, however, they also told us that there is a good chance that Scott’s remaining side-effects are permanent now. There is still some chance that they could improve over the next three months, and we will know for sure what his new normal is by his 6-month check-up in November, but usually things have resolved as much as they are going to by now.

In spite of this possibility, we are so thankful that we learned about Proton Beam Therapy and even now, we wouldn’t have chosen any other option. From the beginning, we knew that 95% of men who choose PBT walk away with results that leave them with a quality of life equal to, or even better than, before treatment. That means that there is that other 5%. These men do suffer some permanent changes, and it seems that may be where we are. But even the side-effects still lingering for Scott are nothing compared to the side-effects we were told would be certain with other treatment options. So we’re thankful and rejoice in God’s guidance during our search for treatment options; His comfort during the really tough weeks of very rare side-effects; His healing over the last few weeks; and His love that determines what is best for our continued refining in this life.

One more time, we want to stress the importance of catching prostate cancer early! We want to, once again, urge all men to get annual DRE’s and PSA checks. The earlier this is caught, the greater your chances of full recovery. If there is a history of prostate cancer in your family, these checks should start around age 40. Please don’t listen to the doctors who are now beginning to support the idea that, because it’s a slow-growing cancer, there’s no urgency in catching it early. This is not true! Our doctor told us at this visit that they see men who got their initial readings and cancer diagnosis, but who postponed treatment even for a few months because their numbers weren’t so bad. Within a few months, things had already changed enough that these men were then looking at a completely different long-term picture for healing.

We also thank Him for providing us an incredibly secluded and quiet place for this trip where the two of us have relaxed more than we can remember doing for the past year. We were in great need of this time to connect with each other and to have individual time to meditate on God and His Word and workings in our lives. A gift from a friend provided a few extra days here for us to just rest. We can’t begin to express our gratitude for this.

Perched up on a mountain, this cozy little place offers a breathtaking view and woods filled with wild turkey, deer, tranquility, and peace.

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Morning view during our prayer/meditation time

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Even Murray, who tagged along with us, can’t get enough of this view.

On the home front, our family is currently going through some pretty hard times. We may share more later, but for now, please pray that we will keep trusting that God is directing all our steps, filling us with wisdom as we parent our unusual family, determining what of our material needs are “real” needs, and timing His provision perfectly as part of His plan for our lives and for the lives of our children.

Most of all, please pray that we will face each day full of gratitude and a firm belief that, as is stated in the quote above, “the more [God’s children] are blown, the deeper will they be rooted…” Please pray that we will never miss any opportunity God brings to us that could result in our bearing more fruit.

Another book signing coming up, and some fun news about our next book. We’ll share that in our next post! Stay tuned, and thank you so much for those of you who really do pray for us and support us in so many ways. We cannot do this life alone, and we rejoice that God hasn’t asked us to. In addition to His continued supernatural help and provision, He has blessed us by bringing so many into our lives who love us and are wiling to be used by God in this mission He has given us. Thank you with all our hearts.

I will close with one of my favorite verses. We are holding onto the truths in this verse so much right now.

“He is like a tree planted by water, that sends out its roots by the stream, and does not fear when heat comes, for its leaves remain green, and is not anxious in the year of drought, for it does not cease to bear fruit.” Jeremiah 17:8

Knoxville - First Post-Treatment2

Sunset from our windows